Welcome to Pachyonychia.org
 
     

Pachyonychia Congenita is an ultra rare genetic skin disorder that causes blister and calluses on the feet, thickened nails, cysts and other painful condtions.

Help us raise awareness and funds for research.

DONATE HERE FOR PC AWARENESS DAY

ALL DONATIONS MATCHED $2-FOR-$1

More about Pachyonychia Congenita

 

Patient Support Meeting - Roissy, France June 8-9, 2012

These meeting are so important, not only to gather as patients, but because of the impact it has on PC research. We hope every patient in France or the surrounding areas will do everything possible to attend this event. Prof. Irwin McLean, Dr. Frances Smith, Dr. Roger Kaspar, Dr. David Hansen, Dr. Alain Hovnanvian, Dr. Edel O'Toole and others are giving their time to meet with PC patients. We need everyone on the PC side to participate See details

Matching Funds Report 2012
our sponsor has agreed to continue the
$2-for-$1 match in 2012

As of
26 Apr 2012
2011 Donations
$19,710.00
Matching Funds
$39,420.00
Total to Date
$59,130.00

 

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Last Updated: 26 Apr 2012
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