IPCRR Data Published in Journal of American Academy of Dermatology

We are so pleased that the data from the International PC Research Registry has now been published in the Journal of the American Academy of Dermatology (JAAD). The article reports data on the first 254 genetically confirmed PC patients. The registry continues to grow and we continue to learn more. A number of studies have been completed and others are underway thanks to the patients (now over 500) who participate in the IPCRR. If you have not yet taken time to join the Registry (complete the questionnaire, send in photos, complete genetic testing) we urge you to join with other PCers and help us find treatments and a cure for Pachyonychia Congenita. To view the article on the PC website, click here. Then, in the search field put Hansen as the author and 2012 as the year. Leave everything else blank. The article can also be viewed online at the JAAD site. We are so grateful to the authors, C. David Hansen and Mark Eliason (and many others on our Medical and Scientific Advisory Board) who have worked for several years in preparing the data for publication. It is a very significant achievement and will make a difference in PC awareness among dermatologists around the world.