Patient Support Meeting Archive

Video Archive

Click Here to select a topic of interest from videos and presentations from past meetings.

Scholarship Funding

Since 2004, annual Patient Support Meetings have alternated between US and Europe locations. We hope that donors will continue to provide scholarship funding for PSM. Our goal is that scholarship funds will pay for meeting fees for every patient to attend their first PC meeting. In addition, funds are needed for PC patients who need assistance for travel costs.


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PC Kids Club Webmeetings and PC Patient Webmeetings

These webmeeting are held from time to time and on request.

Patient Support Meetings (PSM) are held every year and alternate between US and European locations. These meetings are life changing events for those who attend. In addition to meeting other PCers and sharing experiences, presentations are given by the world's leading scientists and physicians on PC-related topics and the latest PC research.

This page is under construction. Be on the lookout for past meetings, photos and more information.


2014 Edinburgh, Scotland UK - October 26-28, 2014

The meeting was held at the Edinburgh Capital Hill Hotel. This meeting was organized by Irwin McLean and Frances Smith and their team. There were 42 PCers and almost 100 attendees. Along with this meeting we held full dermatologic exams and a pain study. Read more in the November 2014 PC NewsBrief.


2013 Santa Cruz, California USA - June 20-22, 2013

The meeting was held at the beautiful Chaminade Hotel and Spa. Of special interest was the testing of special microneedle arrays as part of preparations for future clinical studies. The meeting concluded with the 2nd Annual Run-Bike-Run PC Fundraising event.

2012 Edinburgh, Scotland UK

The meeting was held at the Best Western Hotel in Edinburgh, Scotland and co-sponsored by PC-UK. There were 47 PCes and a total of 98 attendees. More than $6,000 in scholarship funding was awarded.

2012 Paris, France

Le Coeur au Pied sponsored this meeting held in Roiss, France at the *. There were 29 PCers and 60 total attendees. Scholarship funding of over $2,500 was awarded. L'Oreal presented a grant check to PC Project in support of PC Awareness Around The World events.

2011 Philadelphia, Pennsylvania USA

The largest PC meeting to date was held at the Marriott Airport Hotel. 65 PCers and 134 total individuals participated. A major pain study was conducted during the meeting. Scholarships of more than $7,500 were funded.

New York City Mini Meeting

In November 2011 a special PC dinner was hosted for PCers in the New York City area.

2010 Edinburgh, Scotland UK

Patients from many countries in Europe attended this meeting held at the Best Western Hotel in Edinburgh, Scotland.

2010 Roissy, France
2010 Miami Bach, Florida USA

2009 Salt Lake City, Utah USA 

The meeting was held September 24, 25, 26. The site was the Red Lion Hotel located in Salt Lake City, Utah. A total of 61 individuals (including 23 PCers) attended. The theme of this meeting was “Prepare for Success.” Every session was focused on specific things PCers can do to be successful in life, regardless of having PC. 2009 Program

2009 San Francisco, California USA
2009 New York City, New York USA Dinner
2009 Calgary, Canada Dinner
2008 Pitlochry, Scotland UK
2008 Hefei, China
2007 Park City, Utah USA
2006 Dundee, Scotland USA
2005 Niagara Falls, Ontario, Canada
2004 Dundee, Scotland UK
2004 Kansas City, Missouri USA
2004 Salt Lake City, Utah USA