PC Community Stories

PCers have a great attitude

It is "do all you can, as long as you can despite the pain!" We definitely cheer that approach. However, stories from young PCers (those age 12 and under) who have mild plantar pain and few cysts or other PC symptoms may seem to show you can just be 'tougher than PC.'  That approach is not the most effective, since when full grown, PC pain will increase to the point that being tough isn't enough. It's important that youth develop and find 'off the feet' activities and skills. Most PCers are very, very high achievers and find a way to excel although PC pain has a definite impact on quality of life. That's a whole story in itself!

 

Jan's Corner

The "Living With PC: Jan's Corner" posts from 2003-2012 were very popular and are now accessible in the Living With PC Archive. You may read individual topics or use the free download link for the complete collection of Jan's Corner in E-book formant. Also, these posts are indexed and available on the PC Wiki so you can search for a specific word or topic.

You may also Connect With Us to order a printed bound copy of the blog.

 

 

 



My Story:

James Wark


James has felt a genuine bond of dedication and a feeling of warmth and love within the PC family

From a young infant knew I was different from other children I was around. As a youngster you know you’re different, but you don’t ask or say anything to anyone. You just get on with things. I suppose because my mother and gran and other members of my mother’s family were the same, I didn’t think anything of it. At that time in the 1960’s, my mother and others did not know anything about this condition, PC.

What I can tell you is that I always struggled with sore feet and I could see my nails were UGLY to look at and not like others around me. I come from a family, that on my Father’s side were very good footballers as I was, but I could not last the full game like the guys playing with us. I was in a lot of PAIN, mainly my feet were aching. I like any young lad loved playing football. My Father had a boy’s football team who played around the city of Glasgow. I remember how upset I would be to find I was not picked to start a match or if starting I was substituted part of the way into the game. I was so excited to be named in the team at the start of a game! Although I knew that I would not last the whole game, each time I would go through the same pain, hurt, and emotions when substituted.

As an adult I continued to live with the pain in my feet. Then I suffered other types of pain, caused from abscesses and lumps (cysts) on all areas of my body, adding discomfort and some times greater pain than the sore feet.  I just got on with life as tough as it was. I’ve never had a lot of confidence in my life. I’ve always sat in the back ground, feeling second best.  Today I feel much the same. Going through life with the ups and downs so to speak, I questioned, WHY ME? Although other members of my family have this condition, now known to me, I still feel very much alone. I live with this on my own.

I was taken back, with words I can’t find, to know that other people outside my family group sadly suffer like I do. I feel most upset to know other good people worldwide are in pain. In another way it is like having a family again. When saying that, I mean NOT just the people with PC, but the wonderful professors and doctors all over the world taking the time to look for answers. There is a genuine bond of dedication and a feeling of warmth and love within the PC family. I, James Wark, would like to say for everyone who suffers and the people connected to the PC project a special thank you.