International PC Consortium (IPCC)

Join the IPCC

Connect With Us to join the IPCC (to receive the quarterly IPCC newsletter and actively seek collaborations to move research forward).
News and Events includes current IPCC Newsletters and meeting announcements.

News Archive has past issues of the IPCC Newsletters
Meeting Archive includes IPCC meeting reviews
Video and Presentation Archive includes IPCC meeting presentations

IPCC Chair

Eli Sprecher has led the IPCC since 2009 with more than 150 professionals now participating

Diagnostics and Genetics Team

Frances J.D. Smith, Chair

Team Members  
Philip D. Gard Edel O’Toole
C. David Hansen Eli Sprecher
Leonard M. Milstone Maurice van Steensel

Research and Clinical Trials Team

Roger L. Kaspar, Chair

The purpose of this team is to focus specifically on clinical trial development and assist one another in moving lab research forward to delivery to patients. The team membership fluctuates depending on specific needs and focus. Outside consultants are often involved with IPCC members where special expertise is needed. Many IPCC researchers have ongoing projects to develop therapeutics for PC. These are often featured at the annual IPCC meetings.

Physician Network

Quarterly Webmeeting and Annual IPCC Meeting




Formed in 2004, the IPCC welcomes all scientists and physicians interested in collaborative efforts to develop and deliver effective treatments for PC and related disorders.

Leadership in PC Research

In 2004 Sancy Leachman, a dermatologist at the University of Utah at that time, suggested an International PC Consortium (IPCC). Sponsored by PC Project, the registry now has more than 150 participants. All are welcome to join in collaborative research efforts, genetic discoveries and patient care.

In this 2011 video, Sancy Leachman describes how two top researchers were recruited for the IPCC

     W. H. Irwin McLean          Roger L. Kaspar          

Both Irwin McLean and Roger Kaspar continue to collaborate and lead research efforts for PC.

We are so grateful for the experts working closely with us -- without the support and direction of the IPCC members we would make no progress. We invite you to participate in this unique community with others pledged to work together to make a difference. Thank you!

IPCC Through The Years History - Click to enlarge view