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PC Project
Contact
Information

Please contact us if you have any questions or if we can be of help in any way. There is no charge for any service provided by PC Project. All of our work is supported by donations to our charity.

BY EMAIL

info@pachyonychia.org

BY MAIL

PC Project
2386 East Heritage Way, Suite B
Salt Lake City, UT 84109

BY PHONE

801-401-6300
877-628-7300 (toll-free)
(There is a 24 hour voicemail answering service)

BY FAX

877-628-7399

 

If there is anything we can help you with, please contact PC Project.

If you have a special need, please Connect With Us. The starting point for all services is participation in the patient registry and services are provided by PC Project at no cost. If we do not have the answers, we will work with you to find those who can assist.

Following are a few examples of PC Project services (in additional to physician consultations and genetic testing):

Disabled Parking Permits

PCers around the world have obtained letters from PC Project to assist them in qualifying for disabled parking permits.

Employers

PCers may need letters to assist them in special arrangements at their work site. For example, in one case, PC Project helped a PCer gain permission to wear tennis shoes and socks (not stockings) at work. In another situation, PC Project helped get a classroom teacher a permanent classroom so that it wasn't necessary to walk and change rooms several times a day.

School Administrators, Teachers, Counselors

PC Project has helped gain permission to wear sandals in winter, opt in/out of sports as needed, have ibuprofen available in the office, make accommodations in college schedules and housing, and, of course, establish PC is not a fungal infection.

Disability Qualification

PC Project has helped PCers in several countries obtain disability status which can mean income assistance, child care assistance and other benefits as needed. This is very difficult to achieve as PC is not on the short list of approved disorders and is determined on a case-by-case basis.

Local physician consultations

PC Project often arranges for conference calls with local physicians to discuss care for PC. These conference calls have been effective to clarify actions with the local physicians who may be unfamiliar with PC.

Connect with other PC patients or parents.

PC Project hosts PC Patient Chat on Facebook for those in the patient registry where you can connect with other patients. You may also request that PC Project share your email with others in our database or request a special webmeeting to discuss any specific problem or situation.